Have you ever felt like you were out of the loop? I certainly have, it's a terrible feeling and I'm currently feeling out of the loop.
Bella (thankfully) still naps twice a day and so we usually don't begin our day until about noon. This means we miss out on morning outings. This isn't a big deal because I'd rather Bella be well rested than cranky and out & about. We are getting to the point where Bella's friends are napping just once a day (or not) and so we're missing out on music classes and play dates.
Recently, Bella has had more appointments than normal. She has physical therapy twice a week, her helmet appointment once every two weeks and she has had several appointments with specialists, too. We have spent so much time (and money) on doctors that we probably could have made for a medical degree by now!
Last week, we missed out on a trip to the aquarium and a birthday party. This week we're going to miss out on a music class and a play date. Poor Bella has 4 appointments this week! She went to physical therapy today, she has an appointment with the neurologist on Thursday and physical therapy and an appointment with the cranio-facial specialist on Friday. Enough is enough!
We are optimistic that this week will be pivotal in Bella's treatment. We are meeting with a neurologist to rule out any neurological issues with Bella's overall development. We are not quite as concerned at this point because she is pulling up and cruising, like she should be. She isn't walking on her own (at 13-months) so this may still be a concern to the doctor. We are meeting with the cranio-facial specialist to determine if Bella can be discharged from her helmet. In this case, I'm expecting the worst and hoping for the best.
Bella's health is first and foremost in our lives. I will do whatever it takes to ensure she is physically and developmentally on track. We have hit a few hurdles and we're hoping to jump past these hurdles shortly. Please keep Bella in your thoughts and prayers this week.
Goodnight y'all... this mama is exhausted, both physically and emotionally.
Ian, Kim & Bella